Ocrevus, Visit From The Parents

.    I have my first infusion of Ocrevus on Friday, I can't wait! Interesting lead up to this one. Do you know how you have to battle the  insurance company for every single thing that you get? With this one what happened was that the infusion center took care of everything. The initial request was denied, they took care of the appeal and let me know when it was all finished. They must really like me, think I'm a great guy? Well anybody that knows me knows that's not true. The reason it works that way is that the infusion center pays for the medication upfront and then is reimbursed by the insurance company. They want to make sure everything is in place so they don't get left holding the bag.

    The parents and the sister came up for a long weekend. It was great to see them, they live three hours away and don't get up this way much very often. The parents are 82 and 81 in relatively good health, but showing signs of age. That's tough to see, especially when I don't see them very often. There were no major fights to report, which is always good with my family, so I'll take that as a win. They headed out this morning and I already miss them!

Weight Loss, Exploding Gallbladder, Social Security, Medicare, The Mother In Law, Bioness, Bladder, Wake Apnea, And A Dog

okay, so what's been going on?  I lost almost 90 pounds, have kept it off, as a result of the weight loss my gallbladder exploded New Year's Eve, so I had surgery for that. My health care provider has stopped paying my claims as primary because I'm supposed to be on Medicare. Medicare starts July 1, but I have to pay a $140 a month penalty because I didn't sign up when I was eligible, nice. Just got a letter from Social Security saying that as a result of a random computer audit it was discovered that I was being paid too much so my monthly amount has been adjusted by almost $900. The mother-in-law went into the hospital to have some tests run and they made an error in her medication that put her in a coma that lasted for the better part of month. She is in a rehab facility fighting to get to a point to be able to take care of herself again. So other than that Mrs. Lincoln how did you enjoy the play?

My Bioness leg stimulator has been replaced through the extended warranty that was bought for $500. The straps that hold tight to my leg are the last thing I'm waiting for, seems they are on backorder. Curious what else the straps are used for that they don't have them in stock at all times, and are they going to replace the contact pads that are being ruined because they are out of stock? The body is pretty much shot, not too many things working the way they should, if working at all. A lot of the places that have been numb for years suddenly are extremely painful. Bladder issues seem to be the order of the day, when the urge hits you'd better get out of my way! I've developed this little thing that the neurologist calls wake apnea, a rather bothersome new edition to my old repertoire. Other than that it has been business as usual, the wife still hasn't tossed me out of the house, the kids still hate me, but we did get a dog, Rosie is a great addition to the family.