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Friday, July 28, 2017

Wound Care All Finishe, Orioles Giveaway

     I went for my last check up for the wound on my rear end today, everything went well, it looks like I'm finished! I had a very attractive young nurse, blond and well-built, who was under the impression that she was going to look at a wound on my leg. Imagine her surprise what I told her that it was on my rear end! I'm sure it made her day. After four weeks of bed rest my worry now is that I won't be able to recover from the lack of activity. It doesn't take long when you're as weak as I have become to have staying in bed become an issue. I suppose this means back to therapy and doing my best to get my body back in shape, sounds easier said than done, right?


   The wife and I have plans to go to the Baltimore orioles game in a couple of weeks, it's a giveaway night for a really nice Orioles blanket. Do you know how on said giveaway nights there are usually stipulations to it, anything sponsored by alcohol you need to be over 21, some things are geared towards children, this one is a senior giveaway, anyone over 55! 55? It's bad enough all the other thing is I have to deal with, now they're making me a senior at 55! I guess I don't mind, they are giving away a free blanket. I guess that's so when I sit outside and it's below 80° I can cover my legs!

Tuesday, July 18, 2017

Ocrevus, Visit From The Parents

.    I have my first infusion of Ocrevus on Friday, I can't wait! Interesting lead up to this one. Do you know how you have to battle the  insurance company for every single thing that you get? With this one what happened was that the infusion center took care of everything. The initial request was denied, they took care of the appeal and let me know when it was all finished. They must really like me, think I'm a great guy? Well anybody that knows me knows that's not true. The reason it works that way is that the infusion center pays for the medication upfront and then is reimbursed by the insurance company. They want to make sure everything is in place so they don't get left holding the bag.

    The parents and the sister came up for a long weekend. It was great to see them, they live three hours away and don't get up this way much very often. The parents are 82 and 81 in relatively good health, but showing signs of age. That's tough to see, especially when I don't see them very often. There were no major fights to report, which is always good with my family, so I'll take that as a win. They headed out this morning and I already miss them!

Saturday, July 15, 2017

Stuck In Bed With A Sore Butt, Got A New Set Of Wheels

     Long time no see, I know. I find myself with more time on my hands than I know what to do with, and that's saying something, considering how bored I am normally. I find myself in bed, have been here for the last three weeks. I developed an abscess on my rear, just what I needed! The doctor at the wound care clinic thinks it is just one of those things, not caused by pressure from sitting in the wheelchair all day. Not much of a difference, I still find myself laid up in bed.

   About a year ago I received a new wheelchair, state of the art, and a piece of garbage! It was a quantum heavy duty by Jazzy, tilt, all the bells and whistles. In the first three months I had it, four of the motors went up. I threw a royal hissy fit and the company took it back. I went with a new company, figured it would just be a matter of ordering a new one, right? Nope, I had to start the whole process over from scratch. Finally I got the new one, a Permobil M3000, so far so good, except I flipped it over going top speed on the sidewalk. That story is for another day.

      

Monday, July 11, 2016

Changes in living arrangement, time to stop driving

Ok, so what's new? We moved into a new house, a rancher that I can access everything. It's raised, so we have an outdoor elevator to gain entry, pretty cool! I just got a new wheelchair, very comfortable. I'm glad we didn't paint the new doors or the hallway yet, I have taken some pretty good size chunks out trying to get used to it! My soon to be 90 year old father in law lives with us, now that's a challenge! I spend a good chunk of my day reminding him where the bathroom is, and then explaining what you do in there!




I'm coming to the end of my driving, sad, but true. The weakness in my arms is the issue. I can't hold my right arm up at all, and I've begun to drop things with the left. It's so strange, I drop them and I'm not even aware it happened. I'll miss the driving, and the independence it brings, but a man has the know his limitations. I think George Washington said that, or maybe Dirty Harry, I often get those two confused?

Wednesday, June 29, 2016

Hey, I'm back!

Hey, what did I miss? Took a break for a while, thought I'd get back to it. Lots of changes on my end, I'll try to lay them out over the next few days. I hope everyone is well, I look forward to catching up!

Wednesday, August 20, 2014

Thinking Of Intrathecal Methotrexate, Screened In Porch

So I've been doing some reading about intrathecal methotrexate for the treatment of progressive forms of multiple sclerosis? Since I'm lucky enough to have joined the progressive club I probably should look into it, don't you think? I already tried mitoxantrone, so another trip to the oncology center is no big deal, gets me out of the house! They need to change the description of how it's administered, lumbar puncture, sounds so gruesome! Maybe call it lumbar introduction, hello lumbar! Sounds like something you'd read on an autopsy, victim suffered from a lumbar puncture. Stay tuned, I may be starting a new adventure?

I think I want a small screened in porch off of my bedroom, not to entertain, just to go sit? A place to escape to where I can feel the breeze, but not have to deal with the bugs. Nothing fancy or big, just a place to sit and plan my overthrow of the world. Room for 2 chairs and a table, figured I'd let the wife come out with me too. Oh, I am so planning an overthrow!

Tuesday, August 19, 2014

Wheelchair Accessible, Steps Are A Problem


We took the wheelchair out to dinner, or did it take me? Funny how you notice things when your perspective changes, and your altitude. One of the thousands of local eateries, the bar we met in, is a great place, if you are walking through it. In the chair there wasn't enough room to get past the tables and booths to get to the bathroom! I guess it was wheelchair accessible, as long as you didn't have to use the facilities?

Have to figure out how to navigate the 4 steps to the bedroom level of the house? They have wheelchair platform lifts, but how do you go about getting them? They made me take medicare, I suppose I go through them? Never imagined those 4 dinky little steps could cause such a problem? I suppose I could just live my life upstairs, but I'm not ready for that yet. We will figure it out, we always do.

Friday, August 15, 2014

32 Years With The Wife, Lucky Man Even With That MS Thing



Met the wife 32 years ago today, locked her up for solicitation! I kid, it's one of the things she likes about me!?!? We were introduced by a friend and things have never been the same again, in the best possible way. Everything I have, everything I am comes directly from her. Baby, you're the greatest!

What a wild ride the last 32 years have been!  I was having issues then, wouldn't be diagnosed for 5 more years. I was on top of the world, nothing I couldn't do, and she was there to see all of it, the semi pro football, softball, it was great! Unfortunately she's been there to see me when I wasn't riding so high, falling, not making the bathroom, the steady decline of my body. She has been the one constant, along with the family, that I knew was never going to change, would always be within my grasp. In a couple months we will be married 30 years, best choice I ever made, so happy she said yes to the dress!

Thursday, August 7, 2014

Snakes On A Ramp, Better Living Through Chemistry



So I saw yesterday my friend Kim had a snake on her ramp. What are the chances the wife would come home and find one on ours? She called me from the driveway asking what she should do? I told to use the front door, good advice, right? I should have asked the brother to build a snake proof ramp! Thanks to Kim for sending her snake mojo to Baltimore!

The pain doc gave me a medicine refill over the phone yesterday, thought that was awfully nice. He knows the month supply of 90 Oxycodon usually lasts 3 or 4 months, so he was comfortable doing it. Got the script filled and it was for 240 pills! I think they are going overboard with this whole "lets keep you comfortable" gig? Not complaining I guess, just tired of depending on pharmaceuticals to feel quasi normal. 

Wednesday, August 6, 2014

Proud Owner Of A New Ramp, My Back Is At It Again


We finally broke down and added a ramp to the side porch, I'm spending more time in the wheelchair, figured it was time to get it in the house? The brother came and built the ramp, enlarged the patio at the end to give me plenty of maneuvering space as well. A friend from high school came and did the railing with his wife, thanks to them. Imagine my surprise when I wheeled up and the chair didn't fit through the door! Luckily another friend had a chair for sale that did, thanks to him. Last obstacle are the 4 steps up to the bedrooms and baths, sure we will be able to tackle that one too. Thanks to everyone that helped, George Bailey has nothing on me!

The time I spent down waiting for back surgery all but finished my legs, not much get up and go left in them. Think of how ticked off I was a couple of days ago when I got in the shower, turned to close the curtain and found myself laying on the floor! This last surgery lasted about 3 months or so, same problem is back with a vengeance. Now we have to decide what to do? I can manage the pain I'm tempted to do nothing, surrender to the chair full time, it's coming anyway. At what time are you excepting the inevitable or giving up?

Friday, May 23, 2014

Twilight Zone Dentist, Friends That Offer To Help


I love the world, always something to see, never gets old. Went to the oral surgeon yesterday, 8am on a chilly Baltimore morning. Sitting there with the wife, in she walked! I want you to try and picture this with me, I saw it and still can't believe it. 2 or 3 of us surgical candidates in the waiting room when in she walked. High heel shoes, lime green leggins, a purple bowler hat, and her top measurement had to go 48 GGGGG! Normally I don't discuss these things in this forum, but this time I felt compelled to share.  Oh, did I mention she had string bikini top on? The wife wouldn't let me ask her if I could take a selfie with her, so I took a snap of her license plate, FETTISH1. Man I love this town!

Had a friend and his wife come by today to replace the crank mechanism on two of our windows. I went to school with both of them, nice to have contact with old friends, 34 years since we got out of school, hard to believe. He wants me to make a list of all the little jobs, and not so little ones too, get them taken care of all at once. My strong suit isn't asking for help, that's why it's so nice when it's offered.

Wednesday, May 14, 2014

Dental Destruction, Therapist Must Be Crazy

I was anemic when I was a baby, the mother didn't know she was supposed to give me the iron through a straw, she gave it to me on a spoon, or so the story goes. As a result I have horrible teeth! When I had the amalgam fillings removed in the early 90's they numbered 26! I am meticulous with my oral hygiene, didn't seem to matter? I have a few, OK a bunch of crowns, always something going on. Had a loose crown, figured I'd go in, have it cemented back on? Won't need to do that, running my tongue over it today the whole tooth feel out!  Appointment next Thursday with an oral surgeon to have the rest of the tooth removed.

P/T girl comes today, got a new one, she comes when she says she's coming, and seems to have a plan. Met with the O/T gal finally, had to get that precious authorization. The lack of a plan is what I have always disliked about therapy, it always felt like they were making it up as we went along. She has go to exercises, keeps me on task. I will see about O/T, have my doubts to be honest, some radical ideas like doing laundry and cooking and assorted choirs!