Well I did the IVIG and I'm still here! Nothing to the therapy, just time consuming. What are my thoughts you say? Well not sure how to answer that one? Didn't get sick, really not one of the side effects. What I got was extremely weak, spent the next week in bed. The strength came back, or my version of it at least, but that was it. No benefits that I've been able to discern, but I knew it was a long shot going in. Imagine how scared I was when I couldn't get out of bed that first week?
The one thing that has held on is urgency with the bathroom. It's not a continence issue, yet, more a matter of I've lost the luxury of that feeling of, hey, I'm going to need to use the bathroom soon. I'm doing my own version of the 50 yard dash! Like any race, you don't always win, hard to come to grips with, but it is what it is. Needless to say this makes me want to stay close to home, or to be more precise, stay home all together. Did I mention I'm not digging this reality?