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Tuesday, September 10, 2013

IVIG Was Disappointing, Bathroom Urgency Worsening

Well I did the IVIG and I'm still here!  Nothing to the therapy, just time consuming.  What are my thoughts you say? Well not sure how to answer that one?  Didn't get sick, really not one of the side effects.  What I got was extremely weak, spent the next week in bed.  The strength came back, or my version of it at least, but that was it.  No benefits that I've been able to discern, but I knew it was a long shot going in.  Imagine how scared I was when I couldn't get out of bed that first week?

The one thing that has held on is urgency with the bathroom.  It's not a continence issue, yet, more a matter of I've lost the luxury of that feeling of, hey, I'm going to need to use the bathroom soon.  I'm doing my own version of the 50 yard dash!  Like any race, you don't always win, hard to come to grips with, but it is what it is.  Needless to say this makes me want to stay close to home, or to be more precise, stay home all together.  Did I mention I'm not digging this reality?


Muffie said...

I make myself nearly dehydrated to avoid such issues. And that is a very bad practice! Yep, this reality sucks!

awb said...

Muff- I do the same thing, this is a hoot, isn't it?


Karen said...

Ditto, I am not digging the reality either.

B&B issues are nasty. I have both bladder and bowel incontinence...ick. The bowel issue is over by the afternoon, but I stick pretty close to home. When I do go out, it's "adult diapers", for me.

awb said...

Karen - I think I'm moving to the woods, live like a wild monkey boy?

Jasmine Norris said...

Bless you. I consider everyone who is fighting with long term illness are no less than a soldiers of Multiple Sclerosis

awb said...

Jasmine - Thanks, can we get cool uniforms?


Kim @ Stuff could... said...

The bathroom issues can rule our lives....funny how important things like that become.
It is horrible to be stuck in a bed

awb said...

Kim - I'm up now, good to be back in my easy chair!