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Saturday, August 3, 2013

MS Treatment Redux, Social Media Makes My Head Explode

The medicine for the leg pain I'm taking is called Gabapentin, it's the generic for Neurontin, have to say, so far so good.  Let's face it, the pain is never going to go away, but if this stuff can make it manageable I'm in!  Also have rethought the IVIG therapy.  The neuro called the other day and urged me to do it, said the bad side effects date back to when the blood supply was untested, so I'm going to give it a whirl, can't live forever, right?

Trying to figure out the usefulness of social media, think I may be more suited to reading?  I have a Facebook, Twitter and Pinterest account, but it tends to get on my nerves more than it informs me and makes me think, wow, that was interesting.  It be nice if it was chock full of original content, more pictures of folks and interesting tidbits from their lives, less "shares" of someecards with quippy sayings.  I can only take so many pictures of kittens with "smile" attached to them, or 25 ways to fry an egg!


Kim @ Stuff could... said...

LOL I feel the same way about those cutesy shares.....I need to try neurontin again for my burning ?? It makes me so sleepy

Karen said...

I only have a FB account. I can't be bothered with Twitter. I signed on at Pinterest a while ago, but I am never there pinning...seems quite useless really.

Good luck with the IVIG. Hope it helps! I had some Gamma Globulin Therapy (injections) about 14 years ago while living in Australia after being diagnosed with(ME/CFS)/Fibromyalgia. It helped. I was eventually able to give myself the injections. Then I moved back to Canada and it was not a recognized treatment at the time, so I had to stop. I was diagnosed with MS in 2009.

Christie @ the Lesion Journals said...

Gabapentin, the wonder drug. I take it for nerve pain and it saves me! Good luck with the IVIG therapy.

awb said...

Kim - I take it at night, banking on it making me tired

Karen - I was diagnosed in '87, blood supply wasn't as safe as it is now?

Christie - Thanks, keeping my fingers crossed


Julia said...

May not be the majority but some of us feel the same way as you do.

awb said...

Julia - We must be be right, right?