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Tuesday, September 2, 2008

No Prescription Yet For Low Dose Naltrexone

Went today to my primary care physician and talked about LDN. She had never heard of it, and initially told me no. We talked about it for a few minutes, she asked me why I was interested, and I told her what I knew and thought. The problem is that with no clinical trials there is no reason for her to prescribe something that has no connect to Multiple Sclerosis. I understand that, I don't like it, but I understand. She agreed to do a little research and get back to me, that's fair. I know life isn't fair, I guess I was just hoping for a break. I suppose I can always hold out for cyclophosphamide to come available, after it has its clinical trials? What's 5 or 10 more years?

As a side note, I just saw a piece on the tube about the mating habits of voles. It seems there are 2 types of voles, one is monogamous, the other isn't. They have been doing studies of the voles habits for years to figure out why human males stray. I was down in the dumps when I got home from the doctor today, imagine how I feel knowing a voles sex life is more important then my health!

10 comments:

Slammermike said...

Hang in there. Medicine advances at a remarkable rate. They have been working on MS for a while. All of a sudden they will come out with something so simple that it will make you say, Whaaaaa?!?!?!

It will happen

awb said...

It sure doesn't feel that way pal! This has been a long ride, I want off.

froggysoprano said...

Don't ever give up! There are other diseases that are painful and keep one from a normal life. Whatever normal is. Things like depression are painful , stay with you and people treat it as something you choose to have. Like MS , it can be invisible for a long time. Why not write to every medical group you can find and educate them about this. Docotrs are sometimes the last to know about new treatments. A long time ago in another state I had bad side effects from a new acid reflux medicine and saw a doctor about it. he denied it could be the problem, I insisted it had to be. He checked his PDR and came back to suggest I might want to stop the med. Several days later his partner told me the doctors at the staff had talked about it and none knew about this. The local pharmacist did know. I later was scheduled for surgery and in less than 2 feet from the OR a nurse asked if I had taken a medication for diabetes, I had, She told the doctor I could not have anesthesia that soon . The surgery was postponed for a week. None of the doctors knew about this. I could have died if the nurse had not intervened. The local pharmacist did know. So maybe you should work with the pharmacists in your area. Doctors aren't gods even though they sometimes act that way. Wahtever you do , don't give up.

Anonymous said...

You've got the best friends and family in the world who will get you through this. I know it's tough! Hang in there!

awb said...

It gets old always hanging in there. I'd like to coast for a while.

Anonymous said...

Deal - you coast and I'll drive!

Bridget said...

Hi! I just stumbled upon your blog looking for info. related to mine (and LDN/MS), I wanted to invite you to check it out
I am documenting my husband's experience...

awb said...

Thanks Bridget, I will check it out.

Bridget said...

We have been really frustrated with finding a doctor to prescribe LDN though we finally did, and that is when we decided to share our experiences with the drug as we live them! It is kind of our own experiment since they do not do clinical trials - hopefully it will help others make their own decisions about LDN. I hope it helps you as well!

Bridget said...

FYI, here is the list where we found my husband's doctor who prescribed LDN:
http://www.ldners.org/resources.htm

Take care!